Wednesday, 26 April 2017

PSA still going down

I had my latest telephone consultation with Donna Higgins, Brachytherapy Nurse, St Luke's, Guildford two weeks ago.

During the consultation we discuss how I'm feeling and any concerns I have. Donna asks a series of questions based around a questionnaire which I fill in a couple of weeks prior to the telephone call. 

We discussed my tiredness which I'm afraid is very common in Prostate Cancer patients. I've been coping quite well but I know it is the cause of some worry at home.

My PSA reduced slightly from 1.7 to 1.6 and Donna seemed very pleased with this. We also discussed any issues I'm having with frequency of urination and any issues with my bowels. As the Prostate is situated very close to the bowel there can be problems with irritation and frequency. I haven't noticed any irritation and there has been little change in my frequency with the exception of some recent constipation.

As part of the consultation we discuss any issues with my potency. At first I found it difficult to talk about but over time it's become easier. I've noticed a general lack of sensation and I had assumed that this was age related. Donna explained that I could, if I wish, visit a specialist PhyscoSexual councillor to discuss this and any other potency related issues. I'm taking one Sildenafil tablet twice a week and this helps with blood flow, but the downside is that I've found it does effect sensation.

I've decided not to visit the Physco Sexual councillor just yet but the option is there at any time.

My general well being has been good, I've been looking after my diet and eating much more fruit. I'm still a little over my ideal weight but as I feel good I don't think it's a problem.

I still take other medication for my Proclactinoma problem. Daily I take 2 Levothyroxine tablets to counteract my low thyroid output. I use a Testosterone supplement and take a vitamin D supplement. I also take one Tamulosin capsule to reduce Prostate swelling. Every two days I inject Genotropin to supplement my low level of growth hormone.

Twice a week I take Cabergoline which has helped reduce my Prolactin from a level of over 40,000 down to less than 400.

It sometimes feels that I'm a drain on NHS resources!

Work was quiet over Easter with the exception of a good event in Oxford for the Skoll World Forum (worth a look on Wiki or YouTube). I'm currently away working at the National Motorcycle Museum for CVS. Tomorrow I'm back in London on a long day on Thursday for Eclipse then at Cheltenham for three days next week again with CVS so can't complain.

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